For about 5 years I thought I had PCOS. Multiple doctor visits to my OB-GYN ( I even ended up switching OB-GYNs). Both of them confirmed by ultrasound that I had PCOS (note: I had no other symptoms other than an elevated testosterone level years back). So I continued to try to "cure" PCOS through a very strict diet and exercise regime. Throughout the years I was trying to cure PCOS I continued to seek help. No doctor could give me an answer to why I wasn't getting my period. So after a while I gave up. I guess I'll just try to get pregnant because no doctor could tell me why I wasn't getting a period. So begun my fertility journey. First I started with clomid and all the monitoring that came with it. It didn't do anything for me and it just didn't feel right (I still wasn't ready for a baby). Then I stopped trying to get pregnant for a bit and decided to just continue to cure my PCOS. Still no period. Okay, well maybe if I tried an actual fertility clinic they could help me figure out why I have no period. I assumed that they would want to figure out my problem before they determined the course of treatment. Makes sense right?
My first visit with the fertility clinic- which was an hour and a half away from my home and insurance didn't even cover treatment. We met with the doctor. He could not tell me why I wasn't getting my period. UGH, I give up. Just get me pregnant (though my mind still wasn't settled on this course of treatment). So first step was a hysteroscopy. Painful procedure and inconclusive because I am allergic to IV contrast. Next step, the fertility doctor wanted me to take clomid (again) and if that didn't work (again) go for an IUI w/injectable meds or IVF. So we had to take a step back and consider the costs involved. My gut told me this wasn't the way to go and I didn't want to spend thousands of dollars when I didn't feel it was necessary, I mean I still wasn't ready for pregnancy. I just wanted my damn period !!
So time continues to pass....
At my routine OB-GYN check up (with my doctor who I saw multiple times before), finally recommended me to a reproductive endocrinologist (RE) for my PCOS. My first initial thought was WHY THE HELL DIDNT YOU RECOMMEND THIS YEARS AGO?! At the time, I didn't even know what an RE was but I had a good feeling about this.
So my very first visit went as simple as this after I explained my history of my PCOS journey and my very "healthy" lifestyle. "Cynthia, you do not have PCOS you have Hypothalamic Amenorrhea (HA)". I already knew what HA was but I didn't fit that diagnoses. I wasn't anorexic, I didn't have an eating disorder, I was at a normal weight, I was HEALTHY, nope I couldn't have HA. He then proceeded to say stop all exercise. Whoa, wait a second. Stop exercise? So I FINALLY got an answer! But now I have to sacrifice what means the world to me?
Stay Tuned to the beginning of my HA journey and how I overcame it all, got my period back and most importantly starting loving and taking care of myself.
Please note, I am not bashing the doctors above. There is a knowledge deficit with practitioners in regards to PCOS vs. HA. Along with helping woman overcome HA I hope to spread awareness about HA to doctors across the world.
Who Needs a Period? They are a pain in the a** anyway !